Serious gaps in advanced breast cancer surveillance are leading to later diagnoses, and poorer quality of life for patients, says the Breast Cancer Foundation.
Its report released today finds 51% of advanced breast cancer diagnoses occur only after patients self-report symptoms.
Head of research Mehdi Shahbazpour says this is particularly concerning, because most of these people have already had breast cancer, and are therefore known to the health system.
“We should have known that these people are at risk and we should have been able to follow up with them and screen them,” he said.
New report highlights serious gaps in advanced breast cancer care in New Zealand. (Source: 1News)
The foundation says a standardised, nationwide approach to surveillance and follow-up is needed, to give patients a better chance of early detection, and treatment options.
It’s also calling on the Government and Pharmac to provide more funding for early breast cancer medicines.
Kāpiti woman Pauline Hornblow was diagnosed with advanced breast cancer two years after finishing treatment for early breast cancer, after experiencing back pain.
She said if that hadn't happened the tumour on her spine may have gone undetected.
“It would have been good to have a guideline you know, these are the things that you should look out for to protect yourself.”
Health Minister Simeon Brown said the report highlights why improving cancer services remains a top Government priority.
“We have reintroduced the Faster Cancer Treatment target to reduce delays and improve coordination of care, with a clear expectation that people receive their first treatment within 31 days of a decision to treat.”
He said Health New Zealand has also introduced a new tracking system that steps in early if someone doesn’t have a treatment date booked by day 20.
“The Government’s $604 million budget boost to Pharmac has also funded more modern medicines, including two new treatments for advanced breast cancer, giving more patients better options and more time with their families.”
Pauline Hornblow said treatment was important, but she would also like to see a focus on non-medical support, such as diet and exercise.
She also wants people to understand that life with stage four breast cancer can be fulfilling and joyful, and that the disease doesn’t define her life.
“Lifelong learning is all part of it and having that curiosity, and seeking out, setting yourself challenges.
"You've got to have something to live for.”
The Breast Cancer Foundation said there needs to be a rethinking of advanced breast cancer in New Zealand.
“Breast cancer patients who are in the advanced stage feel abandoned and they feel like the health system is forgotten about them," he said.
“But what we are finding out is that with advances in medicines people are actually living much longer.
“You can live a happy long life while you are on treatment for advanced breast cancer.”
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